I’ve had a headache and building light sensitivity for a week now. I’ve been trying to blame it on the Chicken but it is getting steadily worse. My eyes feel heavy and dry, my brow aches, I’m exhausted and today my stomach is upset and I’m nauseous – all signs that I’m having another flare.
What the fuck you all? Everyone assured me that pregnancy would bring nine blissful months of uveitis-free days. When I asked if it was safe to do another transfer all the doctors said yes; I was in remission making it the best time to become pregnant.
I am prepared for the potential flare after delivery. I have accepted that I’ll start immune suppressing drugs after we have our child safely in our arms. I am not prepared to flare during pregnancy. I have no idea what the risks to the Chicken are. I have no idea what courses of treatment are available that won’t harm my baby. I have no clue how much longer a flare might last when pregnant.
I’ve been telling the Professor for the past week that I think I’m flaring and he would say I was not, to relax and to take some Tylenol. When I told him I still felt terrible this morning he said I should call the specialist in Louisville. I called at 8:30 only to be told that my doctor is out and they would have their fellow call me back. They said nothing about getting me in to see a doctor today. The thing with uveitis is that you have to see a doctor as soon as possible. When the disease flares it can come up hard and fast, leaving you with good vision at 7 a.m. and half blind by 7 p.m.
I did some Google searches about morning sickness showing up at 12 weeks and after. There’s not a lot out there saying this is normal other than a few discussion boards that I learned a long time ago not to take seriously. And so now I sit here and wait on a call that might or might not come, worrying that my immune system is kicking up and that in a matter of days it will turn on my sweet Chicken.
I’m so ready to embrace this pregnancy, please cut me a break.