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Uveitis or delayed morning sickness?

12/20/2012

Belle

I’ve had a headache and building light sensitivity for a week now. I’ve been trying to blame it on the Chicken but it is getting steadily worse. My eyes feel heavy and dry, my brow aches, I’m exhausted and today my stomach is upset and I’m nauseous – all signs that I’m having another flare.

What the fuck you all? Everyone assured me that pregnancy would bring nine blissful months of uveitis-free days. When I asked if it was safe to do another transfer all the doctors said yes; I was in remission making it the best time to become pregnant.

I am prepared for the potential flare after delivery. I have accepted that I’ll start immune suppressing drugs after we have our child safely in our arms. I am not prepared to flare during pregnancy. I have no idea what the risks to the Chicken are. I have no idea what courses of treatment are available that won’t harm my baby. I have no clue how much longer a flare might last when pregnant.

I’ve been telling the Professor for the past week that I think I’m flaring and he would say I was not, to relax and to take some Tylenol. When I told him I still felt terrible this morning he said I should call the specialist in Louisville. I called at 8:30 only to be told that my doctor is out and they would have their fellow call me back. They said nothing about getting me in to see a doctor today.  The thing with uveitis is that you have to see a doctor as soon as possible. When the disease flares it can come up hard and fast, leaving you with good vision at 7 a.m. and half blind by 7 p.m.

I did some Google searches about morning sickness showing up at 12 weeks and after. There’s not a lot out there saying this is normal other than a few discussion boards that I learned a long time ago not to take seriously. And so now I sit here and wait on a call that might or might not come, worrying that my immune system is kicking up and that in a matter of days it will turn on my sweet Chicken.

I’m so ready to embrace this pregnancy, please cut me a break.

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23 Comments

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  1. December 20, 2012

    I was blessed with a wonderful pregnancy, but family and friends had morning sickness, nausea, etc. well into second and even third trimester. I hope your doc gets to you soon. The waiting is the hardest part.

  2. Jen #
    December 20, 2012

    I’m really hoping this is just morning sickness and not the uveitis. I have no experience with uveitis but I can tell you the past couple weeks I also have had light sensitivity accompanied by headaches, especially weeks 11-13. It was every few days. Exhaustion and nausea are very possibly from the pregnancy, too. But either way, I know you won’t feel okay until you know what’s going on, so I’m crossing my fingers for the doc to call you back ASAP!

    • December 20, 2012

      Thanks Jen! It is good to know I’m not alone feeling like this!

  3. December 20, 2012

    You know your body better than anyone else, but that sounds just like one of my migraines–every single symptom you described. That’s one thing that I’m quite nervous about whenever I get pregnant, I can’t take my migraine medication and without my meds, I could have a migraine that lasts for days. I hope the doctor gets back to you soon–we want you and that chicken to be as healthy as possible!

    • December 20, 2012

      I have hard about migranes and headaches. I have never had a migrane but do know uveitis symptoms are often misdiagnosed as migranes at first. Hopefully my doctor will see me soon and tell me I’m just a crazy paranoid infertile pregnant lady. As for your migranes during pregnancy – that is a really valid concern. I hope that when your time comes baby will treat your head kindly and you’ll sail through with littler complications!

  4. December 20, 2012

    I have no idea what a uveitis flare feels like, but I’m wondering if what you’re experiencing could also be explained by the hormonal changes you’re going through. I started getting headaches a couple of weeks ago and I’m not one to get them normally. My eyes ache and feel strained (perhaps because vision sometimes changes during pregnancy?) and most days I can’t wear my contacts because it bothers me so much. I’m hoping that’s all it is for you and that you’re able to get some answers soon.

    • December 20, 2012

      Oh thank you so much Jenny, uveitis flares are just like this but it makes me tremendously hopeful to know that you have been experiencing the same thing. My husband’s professor also has chronic uveitis and has described it as living in purgatory because every. single. headache. sends you to the clinic fearing the worst. I seriously have not had a headache that did not send me to the clinic in more than two years now. It’s exhausting (and expensive!) Hopefully the doctors will call soon and give me some peace of mind. I’m considering going to my local crappy clinic just to get some answers.

      • shinara #
        December 20, 2012

        Hi, Belle, I hope you are ok and it isn’t uveitis. I just was at my docs today and was describing what happened with me on Monday (10 weeks). I felt so dizzy and woozy, couldn’t keep my eyes open, and my head ached until I couldn’t stand it. I kept eating thinking I didn’t eat enough. Well I tossed and turned until it stopped around 1 in the morning. My doc said that my hormones, progesterone in particular is what was causing this, and to expect more of it in the future. At least for the next several weeks. Hopefully that is what is happening to you…hormones.

  5. Amy #
    December 20, 2012

    Fervent hopes that it is just normal pregnancy weirdness. I have no experience or knowledge about uveitis beyond what you’ve shared here, but I do hope you get some reassurance from a physician ASAP. Pregnancy is just strange, and perhaps your reasonable vigilance is making it seem more like a flare than other…weird but ‘normal’ things that can crop up while pregnant? Either way, I hope it dissipates very soon!

  6. December 20, 2012

    Oh, this is so frustrating! You seriously don’t deserve this. On the bright side, I imagine there MUST be something you can take to either treat this or relieve the symptoms without putting little Chicken at risk. In the mean time, don’t feel guilty about taking sick days and spending a good few hours resting in the middle of the day. Here’s hoping this all gets sorted before Christmas; I’m sure it will.

  7. December 20, 2012

    I HOPE HOPE HOPE that this is just a quick bout of morning sickness and not a flare. Keep annoying the doctors with your calls to make sure that you get some answers and/or an appointment today!!

  8. December 20, 2012

    I hope things resolve and it is just pregnancy hormones! And, I hope they resolve quickly.

  9. mylifeisaboutthejourney #
    December 20, 2012

    Ugh! Sorry that you are feeling sick again, this late in the game. I am not sure about the uveitis, but I know that my morning sickness came back with a vengeance around 13/14 weeks and then let up completely. I am not sure what the heck happened. I hope that you hear from your doctor soon and can get some relief. Hope you feel better really soon!

  10. jak #
    December 20, 2012

    i hope it is NOT uveitis, but in the event that it is, i am glad you are on top of it and banging on the doc’s door. i have had more asthma and hives with pregnancy compared to before, but it has died down since about 13 weeks. no asthma now and maybe 1-2 hives a day instead of non-stop itching. so perhaps even if it is uveitis, as you head into a blissful 2nd trimester, things will hopefully calm back down.

    do try and stay calm and meditate. i know, i know, same shit they said would easily get us all pregnant, hahaha! but meditation works for my asthma, which is also autoimmune, so i am not totally pulling that out of my arse!!

    good luck, keep pestering your doc!!!!!!!!!

    • December 20, 2012

      hahahahaha! I know you are not pulling it out of your arse 🙂 My stress level has been way to high lately and every time that happens I flare. I am working on breathing and focusing on positive things. Hopefully on Sunday I can return to yoga, too!

  11. Romy #
    December 20, 2012

    I’ve been having migraines on and off for the last 2 weeks as well, and my morning sickness only started shortly before 11 weeks. I’ll be 12 weeks tomorrow. I’ve also read lots of information on eye changes during pregnancy. Apparently the shape of your eyes can change, changing your vision and making it more difficult to wear contacts. So your symptoms could still be explained by pregnancy as well.
    I don’t know much about uveitis, is there a test they can do to rule out a uveitis flare?

    • December 20, 2012

      Not a test, per say, but they do examine your eyes under a silt lamp. A trained specialist can see the inflammatory cells, count them and determine the severity of your flare, where in the eyes they are located and the best treatment for the flare. It is actually a really interesting disease when you are not the one dealing with it 🙂 I’m going in at 4 today and hopefully they will just tell me I’m crazy and to go home and chill out! I’ll update you all when I get back from the clinic, probably around 8 p.m. (it is out of town).

  12. December 20, 2012

    I agree with Jenny, I hope you are not flaring and just experiencing the hormone headaches, because I have had the same thing coming and going for a couple months after I got pregnant. I have not had them again yet, but a few weeks ago I remember having bad light sensitivity and a horrible pain over and even in my eyes. I hope you get answers soon!

    • December 20, 2012

      While I’m super sorry for your pain I’m REALLY relieved to hear this. The tricky thing is that this is the same as uveitis symptoms so I just have to be proactive. I’m hoping the doctors will give me a way to differentiate between the two. Thank you for your kind words!

  13. December 20, 2012

    No idea about uveitis, but I did all of a sudden get headaches in the first few weeks of the second trimester.

  14. December 20, 2012

    Ugh. This is awful. I’m sorry that you’re going through this and am hoping it’s nothing more than morning sickness. Either way, if you don’t hear back from them soon, call and harass the doctor’s office. Yes, they’re busy, but sometimes pushing a bit helps with getting them to prioritize.

  15. Ginny #
    December 20, 2012

    Don’t have any wisdom to share, but hoping this is just hormone-related; honestly it sure does sound like this would be the culprit. But, you are doing the right thing and I hope you’re feeling better soon!

  16. December 20, 2012

    Oh, good grief. Really hoping they call you back soon so that you can get some answers…and really, REALLY hoping you feel better soon, Belle. You deserve to enjoy this pregnancy!

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