Sabine started physical therapy this week. She qualified for state-funded Early Intervention services back in January but due to a shortage of therapists in the Bronx they were having a hard time placing her. The geneticist urged us to get her into private therapy saying that this is honestly the one thing we can do to help Sabine. A quick call to our insurance revealed that even out-of-network providers are covered so why not go with private practice? This way we also receive therapy three times a week (Early Intervention would have only been once a week) and should have her up to speed come fall when she starts preschool.
In other news, Sabine is doing great with her speech therapy. She adores Ms. L and so do I. We received our progress report this week and I am pleased to report we have well over 30 single words and she is finally starting to repeat things we say. She is still very shy around peers and other folks and prefers to communicate with them via sounds and gestures, but this will come in time. I was a shy kid, too, Sabine and I came out perfectly articulate!
And finally, all of her non-genetic testing has come in. Sabine has a clean report from her gastroenterologist and has no signs of a malabsorption problem. We are awaiting a review of a food log from her dietician, but the GI really expects nothing to come from this. Sabine is a picky little eater but she does maintain a pretty healthy diet and her calorie intake is about on par with what it should be for someone her size. We met with a urologist following a UTI and an alarming ultrasound of her kidneys. She explained that Sabine’s kidney abnormality is so minor that it we should not worry. If we do suspect another UTI, though, we need to take her to Children’s Hospital to have a catheter placed (something our Ped office does not do) so they can collect a clean urine sample. If more UTI’s occur we will investigate further, otherwise continue as we are and make sure she stays hydrated. And our trip to a kidney specialist to check for a rare condition that would have caused acid to build in her blood and stunt growth came back negative, too!
So far all is looking good and Sabine is turning out to just be a tiny person with big parents – which is ok in my book! One of my dear friends from home connected me with another mom who has gone through something very similar with her tiny kid. It was nice to hear that he is now three, caught up in gross motor and speech and is tiny and thriving.
I am continuing to work on being kind to myself and not blaming our actions for her delays. I have had countless specialists assure me this is not our fault, but it is still hard to not feel otherwise. I spent yesterday afternoon snuggled on the couch with her, letting my tiny kid nap in my arms and reflecting on how lucky we are to be parenting such an awesome kid. I want to focus on how lucky SHE is to have landed educated, loving parents who will move heaven and earth not just to bring her into this world, but to help her thrive.
And now I hear her starting to stir. Time for our morning milk and to get ready for a busy day – PT and then a special trip to the zoo! What are your plans for today and the weekend?