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The Cutest Gains in the Northeast

05/15/2015

Belle

Gains! Sabine went right for the 1 lb weights at PT and started doing bicep work just like Mama does! It was adorable and I think we need some tiny weights at our house for her to use when I workout!

Gains! Sabine went right for the 1 lb weights at PT and started doing bicep work just like Mama does! It was adorable and I think we need some tiny weights at our house for her to use when I workout!

Sabine started physical therapy this week. She qualified for state-funded Early Intervention services back in January but due to a shortage of therapists in the Bronx they were having a hard time placing her. The geneticist urged us to get her into private therapy saying that this is honestly the one thing we can do to help Sabine. A quick call to our insurance revealed that even out-of-network providers are covered so why not go with private practice? This way we also receive therapy three times a week (Early Intervention would have only been once a week) and should have her up to speed come fall when she starts preschool.

Short on words but REALLY into Legos. These animal Legos are a big hit, too.

Short on words but REALLY into Legos. These animal Legos are a big hit, too.

In other news, Sabine is doing great with her speech therapy. She adores Ms. L and so do I. We received our progress report this week and I am pleased to report we have well over 30 single words and she is finally starting to repeat things we say. She is still very shy around peers and other folks and prefers to communicate with them via sounds and gestures, but this will come in time. I was a shy kid, too, Sabine and I came out perfectly articulate!

"One day this will all be mine!" Tiny kid thinks big. And looks damn fine in a blazer.

“One day this will all be mine!” Tiny kid thinks big. And looks damn fine in a blazer.

And finally, all of her non-genetic testing has come in. Sabine has a clean report from her gastroenterologist and has no signs of a malabsorption problem. We are awaiting a review of a food log from her dietician, but the GI really expects nothing to come from this. Sabine is a picky little eater but she does maintain a pretty healthy diet and her calorie intake is about on par with what it should be for someone her size. We met with a urologist following a UTI and an alarming ultrasound of her kidneys. She explained that Sabine’s kidney abnormality is so minor that it we should not worry. If we do suspect another UTI, though, we need to take her to Children’s Hospital to have a catheter placed  (something our Ped office does not do) so they can collect a clean urine sample. If more UTI’s occur we will investigate further, otherwise continue as we are and make sure she stays hydrated. And our trip to a kidney specialist to check for a rare condition that would have caused acid to build in her blood and stunt growth came back negative, too!

Pushing a Lovie in the swing.

Pushing a Lovie in the swing.

So far all is looking good and Sabine is turning out to just be a tiny person with big parents – which is ok in my book! One of my dear friends from home connected me with another mom who has gone through something very similar with her tiny kid. It was nice to hear that he is now three, caught up in gross motor and speech and is tiny and thriving.

These tender nursing moments help me through the not so tender this-toddler-keeps-biting-me-and-kicking-me moments!

These tender nursing moments help me through the not so tender this-toddler-keeps-biting-me-and-kicking-me moments!

I am continuing to work on being kind to myself and not blaming our actions for her delays. I have had countless specialists assure me this is not our fault, but it is still hard to not feel otherwise. I spent yesterday afternoon snuggled on the couch with her, letting my tiny kid nap in my arms and reflecting on how lucky we are to be parenting such an awesome kid. I want to focus on how lucky SHE is to have landed educated, loving parents who will move heaven and earth not just to bring her into this world, but to help her thrive.

And now I hear her starting to stir. Time for our morning milk and to get ready for a busy day – PT and then a special trip to the zoo! What are your plans for today and the weekend?

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8 Comments

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  1. tchrgrl05 #
    May 15, 2015

    I loved reading this positive post this morning. Sabine is so beautiful. You’re an awesome momma!

  2. May 15, 2015

    I am so excited to read this post. Yes, tiny sure( actually in the pics she doesnt even look that tiny the way you put it), but she sure packs a punch.
    I am so impressed you are still breast feeding with teeth nonetheless. I couldnt take it anymore when my son started biting me!
    This weekend we are going to the airport to show him planes, he is crazy about them looks up in the sky and points out Taate.

  3. May 15, 2015

    I think it’s part of the nature of being a mama (or maybe just a woman?) to blame ourselves for everything, including the things that are totally out of our control, but Sabine is SO incredibly lucky to have you. Really glad to hear that the results you got back so far look good!

    And plans for this weekend include our anatomy scan for baby #3 today, ballet class for my oldest tomorrow, and taking boudoir photos for one of my dear friends on Sunday. Going to be a busy few days!

  4. May 15, 2015

    Thirty single words! That is awesome. I’m so happy to see Sabine continue to thrive and see her little personality bloom through your pictures. 🙂

  5. May 15, 2015

    I’m so glad you’re focusing on what a great job you’re doing as a parent and trying not to blame yourself. None of this is your fault. My husband and I both had genetic testing done after our daughter was diagnosed with 5p- syndrome. Our tests came back showing that neither of us passed it on to her, that it was a fluke, a random deletion of the fifth chromosome. I’m sure you can imagine what a relief that was. Sabine is a great little girl, she has amazing parents and you’re doing everything you can to give her the very best start.

  6. May 16, 2015

    She is lucky to have you, you are right! My cousin just had a new baby with PKU and my reaction was that he’s lucky to have parents who will do everything right to make sure he stays healthy. Not all parents CAN educate themselves and gather professionals to help them. Finances, socioeconomics, education, technology, etc. can make it hard for some parents to do right by their kids. Sabine is VERY lucky to have you!

    30 words is terrific! She’s not even two! Matthew had about that many words at his 2 year well check and he’s doing GREAT with his speech now. Seriously, 30 words is awesome, take it from this speech mom!

    Thank god for insurance. Early intervention was nice for Matthew, but his private speech therapy has made all the difference! Again, good for you for getting more help. Lucky Sabine!

  7. nonsequiturchica #
    May 18, 2015

    So glad that all of the tests that have come back so far have been good news! Izzy is also shy around strangers (even for the first 20-30 minutes around my parents who she sees at least twice/month) and hides into our shoulders. I figure that is normal? I love how Sabine started doing bicep curls at PT. 🙂

  8. Karaleen #
    May 20, 2015

    So happy to hear all the good news on the medical front. AND…OMG>>>>she is sooo cute. Loving all the photos.

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